Full Speed Ahead!

I am excited to announce that I recently became a full time employee of the Friedreich's Ataxia Research Alliance (FARA). The main purpose of my job is to expand Ride Ataxia with the thought that it might become a revenue stream for the organization with rides all over the country. I could not be more excited about this opportunity to continue pushing the limits and seek my passion full time!

My first week at work was a benchmark week for me. I spent the week in Tampa with Juliann Green (FARA development officer) and Jennifer Farmer (FARA executive director) and we had a crazy week full of presentations and meetings capped off by the taping of a television show (NBC Daytime) which aired in 99 different markets all across the country!

I can't wait to see what the future holds for me personally as we work together to raise awareness and research funds for this important cause. The cure is out there...

USF Symposium

Hi Folks,

I realize its been a while. Check out this article about the FARA - USF symposium last week: http://hscweb3.hsc.usf.edu/health/now/?p=7640

Time Trial

Teammate Intro: DIEGO

Trike Commute!

Little Man, Huge Heart

So I came home from the FARA Therapeutics Symposium last Sunday jet lagged, exhausted and more motivated than ever. Spending a few days with the world's leading scientists who are using the money that we raise to find a cure for the disease that alters our lives could not have been more rewarding.
Dr. Mark Pook and Dr. Jim Rusche; both are past recipients of funds raised by Ride Ataxia

When I got home, I was going through my mail and I came across an envelope with second grade handwriting on it. I opened it up and this is what I found:

Enclosed was Jacob's cash donation. Wow, that's pretty powerful. I spoke at Pleasant Ridge School (my alma mater) a couple times and this little guy remembered very clearly, he even spelled Ataxia correctly! Thanks Jacob, you provided another boost at the end of an exciting week!

Presentation

Here is a short clip of my presentation at the FARA Therapeutics Symposium and the Collaborative Clinical Research Network (CCRN) in FA. I'll get better at the videography, I promise...